Salud Mental

Is there interest of Mexican adults in being prepared should they develop Alzheimer’s or other dementia?


Ma. Luisa Marván
Rosa Lilia Castillo-López
Dennys Onofre-Corredor
Ingrid Vargas-Huicochea
Asunción Álvarez-del-Río


Introduction. Alzheimer's disease, as well as other dementias, cause a progressive deterioration of cognitive functions, preventing patients from making decisions and having control over themselves in an advanced stage of the disease.

Objective. To explore some expectations, wishes and preferences in a sample of mature adults should they develop Alzheimer or other dementia.

Method. We surveyed 368 mature Mexican adults without dementia using a large survey created by the authors and used in a previous study; data were collected in some public places where mature people were invited to participate. The survey was completed from July 2019 to August 2020.

Results. Although most participants had considered they might suffer from dementia in the future, less than half had communicated their wishes to their relatives about future medical treatments in case they could no longer decide for themselves; very few had prepared a written advance directive. Most participants agreed that patients should know their initial diagnosis, mainly to be able to prepare themselves. The main reason given by those who would prefer to hide the diagnosis was to avoid suffering.

Discussion and conclusion. Our results highlight the need for health professionals to promote discussion with people about the possibility of suffering from dementia, as well as the importance of making decisions in advance, and letting their relatives know about them.
Alzheimer’s disease, Mexican adults, dementia, communication, advance directives


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Álvarez-del Río, A., & Marván, M. L. (2021). Dilemas éticos ante la Posibilidad de Padecer la Enfermedad de Alzheimer u otras Demencias. Estudio Exploratorio. Gaceta Médica de México,157(4), 418-424. doi: 10.24875/gmm.20000848

Alzheimer’s Association. (2023). Lecanemab Approved for Treatment of Early Alzheimer’s Disease. Alzheimer’s Association. Retrieved from

AMGEN. (2018). World’s Largest Alzheimer’s Survey Reveals Most Adults Believe a Cure Will be Developed in Their Lifetime. Retrieved from (September 17, 2018)

Brewer, C. (2019). O, Let Me Not Get Alzheimer’s Sweet Heaven. Skyscraper Publications Limited.

Briggs, R., McHale, C., Fitzhenry, D., O’Neill, D., & Kennelly, S. P. (2018). Dementia, Disclosing the Diagnosis. QJM: An International Journal of Medicine, 111(4), 215-216. doi: 10.1093/qjmed/hcx181

Brinkman-Stoppelenburg, A., Evenblij, K., Pasman, H. R., van Delden, J. J., Onwuteaka-Philipsen, B. D., & van der Heide, A. (2020). Physicians’ and Public Attitudes Toward Euthanasia in People with Advanced Dementia. Journal of the American Geriatrics Society, 68(10), 2319-2328. doi: 10.1111/jgs.16692

Carpenter, B., & Dave, J. (2004). Disclosing a Dementia Diagnosis: A Review of Opinion and Practice, and a Proposed Research Agenda. The Gerontologist, 44(2), 149-158. doi: 10.1093/geront/44.2.149

Clarke, G., Fistein, E., Holland, A., Barclay, M., Theimann, P., & Barclay, S. (2017). Preferences for care towards the end of life when decision-making capacity may be impaired: A large scale cross-sectional survey of public attitudes in Great Britain and the United States. PLoS ONE, 12(4), e0172104. doi: 10.1371/journal.pone.0172104

Cohen, J., Marcoux, I., Bilsen, J., Deboosere, P., van der Wal, G., & Deliens, L. (2006). European Public Acceptance of Euthanasia: Socio-Demographic and Cultural Factors Associated with the Acceptance of Euthanasia in 33 European Countries. Social Science & Medicine, 63(3), 743-756. doi: 10.1016/j.socscimed.2006.01.026

Donnelley, P. (2014). We Fear Dementia More Than Cancer: Two Thirds of Over-50s Fear They Will Get Brain Condition. Daily Mail Online. Retrieved from (August 14, 2014)

D’Hyver, C. (2018). Ética y Alzheimer. Es un Dilema. In O. Rivero-Serrano (Ed.). Reflexiones Sobre Dilemas Éticos en la Práctica Médica, Tomo I (pp. 59-72). Universidad Nacional Autónoma de México.

González-Huerta, I., Gutiérrez-Soriano, J., & Álvarez-del-Río, A. (2017). Decisiones médicas sobre el final de la vida en pacientes con enfermedad de Alzheimer. Fontamara.

Gutiérrez-Robledo, L. M., & Arrieta-Cruz, I. (2015). Demencias en México: La Necesidad de un Plan de Acción. Gaceta Médica de México, 151(5), 667-673.

Hernández, A., & Torres, S. (2017). La Necesidad de Cuidados del Paciente con Alzheimer y la Respuesta Social Organizada. In L. M. Gutiérrez-Robledo, M. C. García-Peña, P. A. Roa-Rojas, & A. Martínez-Ruiz (Eds.). La Enfermedad de Alzheimer y otras demencias, como problema nacional de salud (pp. 97-100). Intersistemas/CONACYT

Hickman, R. A., Faustin, A., & Wisniewski, T. (2016). Alzheimer Disease and Its Growing Epidemic: Risk Factors, Biomarkers, and the Urgent Need for Therapeutics. Neurologic Clinics, 34(4), 941-953. doi: 10.1016/j.ncl.2016.06.009

Hodes, R. (2023). Anouncements: NIA statement on report of lecanemab reducing cognitive decline in Alzheimer’s clinical trial. National Institute on Aging. Retrieved from (06 Enero, 2023)

Holroyd, S., Turnbull, Q., & Wolf, A. M. (2002). What are Patients and Their Families Told About the Diagnosis of Dementia? Results of a Family Survey. International Journal of Geriatric Psychiatry, 17(3), 218-221. doi: 10.1002/gps.552

Instituto Nacional de Estadística, Geografía e Informática [INEGI]. (2020). Estadísticas a Propósito del Día Mundial de la Población (11 de Julio) Datos Nacionales. Comunicado de Prensa Num. 302/20, 9 de Julio de 2020. Retrieved from

Irish Hospice Foundation [IHF]. (2016). IHF Launch Seven Guidance Documents to Improve Palliative Care for People with Dementia. Retrieved from

Lopez, R. P., Rose, K. M., Kenney, L., Sanborn, V., & Davis, J. D. (2020). Managing Shame: A Grounded Theory of How Stigma Manifests in Families Living With Dementia. Journal of the American Psychiatric Nurses Association, 26(2), 181-188. doi: 10.1177/1078390319832965

Low, L. F., McGrath, M., Swaffer, K., & Brodaty, H. (2019). Communicating a Diagnosis of Dementia: A Systematic Mixed Studies Review of Attitudes and Practices of Health Practitioners. Dementia, 18(7-8), 2856-2905. doi: 10.1177/1471301218761911

Mahieux, F., Herr, M., & Ankri, J. (2018). What Are the Preferences of Patients Attending a Memory Clinic for Disclosure of Alzheimer՚s Disease? Revue Neurologique, 174(7-8), 564-570. doi: 10.1016/j.neurol.2017.10.016

Mastwyk, M., Dow, B., Ellis, K. A., & Ames, D. (2016). Why Attend a Memory Clinic? What do Patients and Their Families Want and/or Expect? Australasian Journal on Ageing, 35(3), 220-224. doi: 10.1111/ajag.12257

Pan American Health Organization [PAHO]. (2017). Life Expectancy in the Americas Increases to 75 Years. Retrieved from (September 26, 2017)

Piers, R., Albers, G., Gilissen, J., De Lepeleire, J., Steyaert, J., Van Mechelen, W., ... Van den Block, L. (2018). Advance Care Planning in Dementia: Recommendations for Healthcare Professionals. BMC Palliative Care, 17(1), 88. doi: 10.1186/s12904-018-0332-2

Porteri, C. (2018). Advance Directives as a Tool to Respect Patients’ Values and Preferences: Discussion on the Case of Alzheimer՚s Disease. BMC Medical Ethics, 19(1), 9. doi: 10.1186/s12910-018-0249-6

Reardon, S. (2023). FDA approves Alzheimer’s drug lecanemab amid safety concerns. Nature, 613(7943), 227-228. doi: 10.1038/d41586-023-00030-3

Reitz, C., & Mayeux, R. (2014). Alzheimer Disease: Epidemiology, Diagnostic Criteria, Risk Factors and Biomarkers. Biochemical Pharmacology, 88(4), 640-651. doi: 10.1016/j.bcp.2013.12.024

Steinbock, B., & Menzel, P. T. (2018). Advance Directives for Refusing Life-Sustaining Treatment in Dementia. Hasting Center Report, 48(S3). S75-S79. doi: 10.1002/hast.919

Tarawneh, R., & Holtzman, D. M. (2012). The Clinical Problem of Symptomatic Alzheimer Disease and Mild Cognitive Impairment. Cold Spring Harbor Perspectives in Medicine, 2(5), a006148. doi: 10.1101/cshperspect.a006148

The Lancet. (2022). Lecanemab for Alzheimer’s disease: tempering hype and hope. The Lancet, 400(10367), 1899. doi: 10.1016/S0140-6736(22)02480-1

van Wijmen, M., Pasman, R., Widdershoven, G., & Onwuteaka-Philipsen, B. (2015). Continuing or forgoing treatment at the end of life? Preferences of the general public and people with an advance directive. Journal of Medical Ethics, 41(8), 599-606. doi: 10.1136/medethics-2013-101544

Velázquez López, G. (2018). Síndromes demenciales. In J. R. de la Fuente, G. Heinze (Eds.). Salud mental y medicina psicológica (pp. 261-283). McGraw-Hill.

Volhard, T., Jessen, F., Kleineidam, L., Wolfsgruber, S., Lanzerath, D., Wagner, M., & Maier, W. (2018). Advance Directives for Future Dementia Can Be Modified by a Brief Video Presentation on Dementia Care: An Experimental Study. PloS One, 13(5), e0197229. doi: 10.1371/journal.pone.0197229

Volicer, L. (2016). Fear of Dementia. Journal of the American Medical Directors Association, 17(10), 875-878. doi: 10.1016/j.jamda.2016.06.022

Williams, N., Dunford, C., Knowles, A., & Warner, J. (2007). Public attitudes to life-sustaining treatments and euthanasia in dementia. International Journal of Geriatric Psychiatry, 22(12), 1229-1234. doi: 10.1002/gps.1819

World Health Organization [WHO]. (2021). Dementia. Retrieved from (September 2, 2021)

Yadav, K. N., Gabler, N. B., Cooney, E., Kent, S., Kim, J., Herbst, N., … Courtright, K. R. (2017). Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care. Health Affairs, 36(7), 1244-1251. doi: 10.1377/hlthaff.2017.0175

Yates, J., Stanyon, M., Samra, R., & Clare, L. (2021). Challenges in Disclosing and Receiving a Diagnosis of Dementia: A Systematic Review of Practice from the Perspectives of People With Dementia, Carers, And Healthcare Professionals. International Psychogeriatrics, 33(11), 1161-1192. doi: 10.1017/S1041610221000119